There are many ways to get information or meet others with stomas.

If you are a twitter user or Facebook user, you can search for many stoma forums or sites.

Here are a few that can help, that also have their own websites, twitter pages and Facebook.

CROHNS & COLITIS UK IS A MUST FOR ANYONE WITH THESE DISEASES. IT HAS A WEALTH OF INFORMATION ON THE WEBSITE, AND IF YOU JOIN YOU CAN GET A “CAN’T WAIT CARD”, AND ABILITY TO PURCHASE A RADAR KEY FOR THE USE OF DISABLED TOILETS.

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PURPLE WINGS IS A FANTASTIC CHARITY TO HELP PEOPLE WHO HAVE ILEOSTOMIES OR COLOSTOMIES BECAUSE OF INFLAMMATORY BOWEL DISEASE. YOU CAN ALSO HAVE ACCESS TO A STOMA NURSE FOR ADVISE. THEY DO LOTS OF FUNDRAISNG AND THE GOOD THING WITH PURPLE WINGS IS THAT YOU CAN APPLY FOR GRANTS.

 

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COLOSTOMY ASSOCIATION HAS LOTS OF INFORMATION FOR THOSE WITH COLOSTOMIES, THEY HAVE AN ONLINE MAGAZINE CALLED TIDINGS, AND STOMA SUPPORT GROUPS INFORMATION.

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STOMA WISE ALSO HAS A COMPREHENSIVE WEBSITE WITH INFORMATION FOR OSTOMATES, AND ALSO HAS AN ONLINE SHOP. IT HAS A SECTION FOR HEALTHCARE PROFESSIONALS TO REGISTER TO.

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THE ILEOSTOMY & INTERNAL POUCH SUPPORT GROUP IS NATIONWIDE WITH REGIONAL GROUPS WHO MEET UP REGULARLY. THE WEBSITE ALSO HAS A FANTASTIC FORUM THAT YOU CAN JOIN AND GET LOTS OF TIPS AND ANSWERS.

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STOMAATJE WAS ORIGINALLY A DUTCH WEBSITE FOR PEOPLE WITH STOMAS, IT HAS SINCE BEEN TRANSLATED INTO ENGLISH FOR US TO BENEFIT FROM. APART FROM LOTS OF INFORMATION, THEY HAVE A “BELLY WALL” FOR YOU TO POST A PIC OF YOUR SIDEKICK (STOMA)

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#IBDSUPERHEROS IS A WEBSITE FOR INFORMATION BUT ALSO ENCOURAGES ALL MEDIA OUTLETS LIKE TWITTER AND FACEBOOK,  TO RAISE AWARENESS OF PEOPLE WITH IBD. YOU CAN DONATE TOWARDS THE CAUSE AND SIGN UP TO THEIR NEWSLETTER.

 

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GET YOUR BELLY OUT IS A GLOBAL CAMPAIGN TO RAISE AWARENESS FOR IBD. YOU CAN DONATE ON THEIR WEBPAGE AND THEY ALSO HAVE REGULAR FUNDRAISING EVENTS INCLUDING A BALL.

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